What to Do Next? A Guide for Parents After an Autism Diagnosis

simbianimashaun83
May 6
3 min read

Updated: May 13

Receiving an autism diagnosis for your child can feel like the ground is shifting beneath you. Whether you suspected it or the news came as a complete surprise, one thing is certain: the journey ahead is deeply personal, often overwhelming, and full of unknowns. You're probably wondering what to do next. As a mother, advocate, and founder of Horizon Over the Spectrum, I created this space to remind you. You are not alone—and there are steps you can take to feel empowered.

A joyful mother and daughter share a moment of bonding as they practice sign language together in a sunlit living room.

In this post, we’ll walk through practical first steps after a diagnosis, share supportive resources, and offer guidance for navigating your child’s unique path with confidence and care.

Step 1: Pause and Breathe

Before jumping into evaluations, therapies, or school paperwork, allow yourself to pause. Processing this new reality takes time—and your emotions are valid. Grief, fear, confusion, even relief—many parents experience a mix of feelings. That doesn’t make you a bad parent. It makes you human.

Tip: Journaling, joining a support group, or speaking with a licensed therapist can help you process this life transition with grace and strength.

Beginning the day with a freshly brewed cup of coffee, a taste of croissant, and writing down goals in a planner.

Step 2: Learn What Autism Is—and Isn’t

Autism is a spectrum, meaning it affects each child differently in terms of communication, behavior, social interaction, and sensory processing. Some children may speak fluently and struggle socially, while others may be nonverbal and thrive with visual supports. No two children are the same.

Helpful Reads:

Step 3: Build Your Support Team

Your child’s care team may include developmental pediatricians, speech or occupational therapists, behavior specialists, and educators. But your emotional team matters just as much. Surround yourself with people who respect your child and your parenting journey.

A supportive group therapy session where individuals share a warm hug, highlighting connection and understanding among participants.

Look into:

Parent support groups (online and local)
Advocacy organizations in your area
Family and friends who can help lighten your emotional load

Step 4: Begin Early Intervention and School Support

If your child is under age 3, look into your state’s early intervention program. After age 3, your child may be eligible for an Individualized Education Program (IEP) through your local school district.

Key Actions:

Request a developmental evaluation in writing
Attend IEP meetings with a trusted advocate if possible
Learn your child’s educational rights

Tools:

Step 5: Focus on Connection Over “Curing”

There’s nothing wrong with your child. They don’t need to be “fixed”—they need to be understood. Spend time learning their communication style, honoring their sensory needs, and creating routines that help them thrive.

Try This: